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Category: 4. Health
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Dems Seek Repeal Of Orphan-Only Drugs Exemption From Price Negotiation
Inclusion of the Orphan Cures Act in the One Big Beautiful Bill legislation implies that certain high-cost drugs with orphan indications will either no longer be eligible for Medicare price negotiation or will have their eligibility deferred.
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UPDATE Long-Term Follow-up in Babies Born with ‘Bubble Boy Disease’ Still Seem Cured
6 of the children treated for SCID living their best lives – credit, UCLA, supplied by the parents Between 2012 and 2017, 62 babies and toddlers were treated with a genetic therapy for severe combined immunodeficiency, known…
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